| By EDMUND M. SILVESTRE Roberto
“Romie” Mal-ang, a 14-year-old boy from Cagayan de Oro City
in southern Philippines, was only 25 pounds when he arrived
in the United States in February to undergo surgery to
correct his multiple congenital defects that severely
stunted his growth, worsened by years of abuse when he
became a houseboy at age 5 after his father sold him to a
neighbor.
Two months since the Connecticut-based Children’s Chance,
Inc. and the Manila-based Philippine Airlines Foundation
flew him in, Mal-ang has gained 10 pounds and is thriving
with a Woodbury, Connecticut family that is hosting him.
With a series of medical tests nearly completed, the Yale
Children’s Hospital is set to schedule Mal-ang’s corrective
surgery for summer or fall.
Among the boy’s congenital anomalies are that he has
patent urachus (his urine comes out of his umbilicus or
navel), ambiguous genitalia which makes it unclear if he is
male or female, and only one kidney.
“Romie has XY chromosomes which means that although he
still has ambugious genitalia, he is a boy,” says Dorita
Urrata, director of Children’s Chance, the same humanitarian
group that brought to New York former conjoined twins Carl
and Clarence Aguirre, and their mother Arlene.
Urrata said several specialists at Yale Children’s
Hospital, including Dr. Robert Weiss, a renowned chief of
urology; and Thomas Carpenter, chief of endocrinology, are
running the tests and are keeping a close eye on him. The
hospital also administered Mal-ang’s vaccinations.
Shortly after his arrival, the boy suffered dehydration
and acute renal failure, but quickly bounced back.
“Romie is doing beautifully,” Urrata told the Filipino
Reporter. “He will have surgeries but not until he is better
able to survive them. In the meantime, he is learning the
joys of being a well-loved child in a home that both loves
him and treats him like one of their own three sons. He is
learning to use the computer and has long mastered the art
of Game Boy.”
Luke and Etta Tracy, the Woobury parents of three, who
are hosting Mal-ang, told the Reporter that surgeons are
inclined to give Mal-ang an Indiana Pouch, a
surgically-created urinary diversion used to create a way
for the body to store and eliminate urine for patients in
the absence of urinary bladders. It also has the advantage
of not using an external pouch to store the urine.
“In Indiana Pouch, doctors take the small intestine and
the appendix and make a pouch inside Romie’s lower abdomen,”
explained Etta Tracy, a registered nurse at St. Mary’s
Hospital. “It has a one way valve so there is no leaking and
then it gets covered with a band aid. It looks like he may
not have a urethra to use to divert the urine since he
doesn’t really have a penis.”
“Romie has gonads (reproductive organ) of a boy and his
endocrine levels are that of a 6-year old child,” Tracy
said. “Doctors said his clock just stopped for some
reason...it could have been malnutrition and renal disease.
Good nutrition plays a major role in the relationship
between the gonads, the adrenals and the pituitary. They
think with good nutrition, Romie has growth potential. His
skeletal system is that of a 6-year-old. Bone plates are not
fused which is a great sign that he has plenty of room to
grow.”
In the meantime, Mal-ang is enjoying a whole new world
with his new family.
“He used to eat only rice, but we encourage him to try
other foods on the table,” Tracy said. “Now he is eating
more and more American foods everyday.”
“Our three sons have been awesome with him,” she said.
“They taught him how to count to 20, sing the alphabet song
and learn to write his name. He now knows how to respond
when someone asks his age because he didn’t know how old he
was when he first arrived.”
“Romie takes care of all his things,” Etta continued. “He
loves his radio that he sleeps with and all his prized
possessions are near his bed. He claimed the top of the bunk
bed. He values the warmth of a blanket, and the simple
things like a toaster. His Papa Luke showed him how the
toaster works and he was very impressed. He is fascinated by
such things as the can opener, the vacuum, the car wash and
most of all the go cart. He was squealing with joy. The boys
give him rides in the go cart all the time. He has adjusted
to the weather nicely.”
“He says he misses his grandmother but still doesn’t want
to go back,” Tracy said. “He doesn’t talk about his mother
and really doesn’t miss her. He doesn’t trust adults. You
can’t blame him.”
Mal-ang is “an example of everything that can go wrong
with the poorest Filipino family,” said Menchu Sarmiento of
the PAL Foundation.
His father, who sold him when he was 5 to work for a
neighbor, was struck and killed by lightning by the time
Mal-ang was 8, Sarmiento said. That neighbor maltreated and
physically abused Mal-ang, she said.
“He has deep scars on his legs from being whipped with
bamboo and other signs of abuse,” Sarmiento added.
Workers at the child welfare office learned of Mal-ang’s
plight and helped him.
Mal-ang was shuttled back and forth between the orphanage
or the hospital and his grandmother’s shanty house in a
remote mountainside of Cagayan de Oro, with no electricity
or running water.
His two sisters — one of them mentally retarded — have
been in orphanage since their father died. His mother is now
with her third partner, a pedicab driver, and has had two
more daughters.
The Tracys said they are doing their best to also help
Mal-ang heal from any emotional or psychological trauma from
his childhood.
“The youth group in our church is going to give him a big
birthday bash sometime in the late summer,” Tracy said. “We
are showing him how to cuddle and hug and sing. We would
like to take him to New York City in the spring for a show.
Just recently, he was a guest of honor at a
Filipino-American gathering.”
According to Urrata, more Filipino children are scheduled
to arrive in the coming weeks for heart and eye surgery.
Children’s Chance is accepting donations (payable to
Children’s Chance) for personal expenses of the children
coming here.
Help may be sent to Dorita H. Urrata, Director,
Children’s Chance, 45 Proctor Street, Waterbury CT 06706; or
call (203) 753-3438 for more information. |